Domino Lane

Memories of rural life on a Pennsylvania farm in the early years of the 20th century. Although the topic is different, I've added (in 2009), my cousin's absorbing paper, "The Handicapped At Home." REMEMBER: To start at the beginning, you must click on the June 2006 section of the archives, go to the June 25th entry, then "scroll up" from there.

Thursday, April 16, 2009

Judy: II, l. (End of Part II)

2). In the interest of productivity and to a degree, self-discipline, I try to follow my own rule of always having a project going to keep me occupied. Because it is too easy a habit to slip into, this rules out daytime TV or reading for pleasure.
3). While I realize the editorial nature of the proceeding comments, I feel that these areas have added measurably to my attempt at being a functioning, contributing, involved person.
b. Again, generous fluid intake is just as important on this day as it was previously - so I continue to keep my kidneys working overtime.

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Wednesday, April 15, 2009

Judy: II, k.

2. At Home Day
a. These afternoons follow much the same routine as a work day, with the exception of getting into the wheelchair and car. They are usually quite full and often include friends who offer their hands for secretarial work and note taking, purely social visits, keeping up to date with a large correspondence and lecture notes and monthly appointments with the hairdresser, social worker and priest.
1). To help us remain interested in others, we have a very special friend who aids us all in keeping life manageable by listening to us vent our fears and frustrations. She is a social worker from the Family Service of Montgomery County who reinforces our judgements and realistically encourages us to live as normal a life as possible. Fortunately, we already have a very close family relationship, so her talents in helping achieve this goal are not used as fully as they otherwise might be.

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Tuesday, April 14, 2009

Judy: II, j.

6. Though not for me, hand controls for operating a car and available and many handicapped are capable of using them.
7. Thanks to the added mobility given me by the car, work at the hospital, visiting, shopping, dining out, etc. are all made possible.
c. The hours remaining after dinner and before bedtime are also spent in a variety of activities, such as preparing for class, entertaining, working on my latch hook rug or needlepoint (done with my teeth), typing and occasionally TV.
d. Keep drinking!
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Monday, April 13, 2009

Judy: II, i.

B. As with the morning program and governed by it, my afternoon also follows two basic patterns:
1. Work Day
a. Once up and able to function slightly more on my own, I can brush my own teeth, feed myself lunch and begin to drink the first of my five large containers of fluid. (Capacity for this quantity of fluid - about five quarts daily - comes from long practice and is not recommended for beginners.)
b. Later, strapped securely into my wheelchair, I am ready to get into my special car which is a Checker Cab converted to include:
1). Extra wide doors which open 180 degrees.
2). Portable ramps for getting into and out of the car.
3). A raised roof to accommodate my wheelchair while I am still sitting in it.
4). Wheel wells in the floor into which the chair wheels are firmly secured.
5). A head rest attached to the back of the wheelchair, completes the transportation picture.

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Sunday, April 12, 2009

Judy: II, h.

g. Inexpensive book holders, which prop a book open on a table for easy reading, can be found in variety or stationary stores.
1). "Books-by-Mail" is a state funded program made available to shut-ins, through which homebound persons can order library books and have them delivered by mail. Books arrive accompanied by a pre-addressed return label and stamps for return postage. A "patient" can be declared eligible by any doctor, visiting nurse, therapist, home-health-aide, etc. Also made available through local libraries are record and tape libraries. Although I do not use these myself, I understand they are a very enjoyable way of "reading" a book. A record player for listening to these in provided by the Society for the Blind as a service for the visually handicapped.
2). Also available are filmed libraries, which project pre-filmed books onto a wall or ceiling for direct reading. Pages are turned forward or backward by pushing a button. Projector and films are supplied on indefinite loan through local libraries and the titles cover a wide range of topics.
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Tuesday, April 07, 2009

Judy: Part II, c.

3. Since most of my productivity and relaxation during the day depends upon the field of communictions in one way or another, we have found or devised much adaptive equipment to aid my independence in this area.
a. In order that I might make telephone calls, we have converted to the pushbutton type phone, which while slightly clumsy for everyday calls, at least enables me to push the "0" button for help in case of an emergency.
1.) For picking up the receiver and answering the phone, I have a "C" cuff of orthoplast taped to the back into which I can slip my hand. Any pliable material, light weight but rigid (such as aluminum) could be used for this. (See Appendix I, drawing 3)

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